Technology

2021 - Consultation response - NHS data strategy
We welcomed the proposals for the NHS's data strategy, but urged that it be developed and delivered in partnership with patients, with greater transparency and engagement to ensure that patients maintain confidence in how the NHS uses their data.

Latest

Prioritising patient experience: Other than experiences of waiting, we measure but we don’t act

Patients Association Trustee Alf Collins and Richard Sloggett, Freelance Health Consultant and Programme Director at Future Health Research, make a simple plea: that all aspects of patient experience – not just their experience of accessing services – is taken seriously.
Supporting patient engagement and revitalising Patient Participation Groups

We have completed an exciting initiative in partnership with the Hertfordshire and West Essex Integrated Care Board (ICB) to support patient engagement and revitalise Patient Participation Groups post pandemic.
New project focuses on improving health equity

Bristol Myers Squibb awards the Patients Association grant to research how to improve access to healthcare for patients affected by health inequalities.
The Untold Patient Stories: Shedding the light on the realities of life with a long-term condition

The Patients Association is running a webinar following the publication of Future Health’s recent report: The Forgotten Majority. This important campaign aims to raise awareness among policy representatives from Government and other political parties, as well as other key stakeholders, about the real life every day challenges faced by people with long-term health conditions and advocate for meaningful policy change as we approach the General Election.

New project focuses on improving health equity

Bristol Myers Squibb awards the Patients Association grant to research how to improve access to healthcare for patients affected by health inequalities.
Public and Patient Experience of the NHS App

Data highlights from the Public and Patient Experience of the NHS App report
Patients value NHS App but not all users able to access information they want, finds latest Digital Coalition report

The Digital Coalition's latest report explores people's use and satisfaction with the NHS App.
Martha's Rule - a major step for patient partnership

The Government has confirmed Martha's Rule will be introduced in 100 NHS sites across England beginning in April 2024.
The Patients Association launches general election manifesto

The next Government must ensure people are able to get the care they need. Reversing the normalisation of the crisis the NHS faces and rebuilding the service's relationship with patients must be addressed. Our manifesto spells out how to make that happen.
Patient engagement in medical technology policy making

The Patients Association and Coloplast UK partnered on a patient and carer engagement project in policy making of medical technologies for intimate healthcare. The project’s report makes five recommendations.
Taking patients with us on the federated data platform

The use of patient data has already changed the NHS and it will continue to do so. The possibilities to improve patient care are huge. However, the NHS uses data from different IT systems that don’t talk to each other causing frustration for staff and delays for patients. Improving connections between IT systems so that NHS staff can plan and deliver services and treatment more effectively has the potential to help patients experience better care. This will help us all.
Relationship between the public, their data, and the health and care system

Our new report looks into the relationship between patients, their data, and the health and care system. It shows patients recognise the potential data use has to enhance healthcare quality but also that to realise this potential, patients’ concerns about how their data are handled must be addressed.
use MY data to help others and help me

Alison Stone, Head of Programmes and Engagement working on behalf of use MY data members, highlights the benefits of sharing our patient data with medical researchers and the impact it has on healthcare.
Digital primary care services: Online GP access and the NHS App

This event was for people who support others to get online and use the NHS App. We were joined by members of NHS England who took the audience through latest developments in the App, how to make the most of the App, and how to support others to use the App.

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