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  • PVM Blog: NHS must provide accessible information

    PVM Blog: NHS must provide accessible information

    Ray is a member of Patient Voices Matter, our lived experience group. He does not feel the NHS is good at listening to patients or providing accessible information. Read more

  • PVM blog: What Patient Voices Matter is teaching us

    PVM blog: What Patient Voices Matter is teaching us

    As you may know, last autumn we formed our lived experience advisory panel, Patient Voices Matter. Since then they've been meeting regular. Our Head of Patient Partnership, Sarah Tilsed, is a member of the group. She's going to be reporting back regularly on what the group are discussing and what the Patients Association is doing to repond to concerns raised. Read more

  • PVM blog: Why I joined Patient Voices Matter

    PVM blog: Why I joined Patient Voices Matter

    Chayim is a member of our lived experience advisory panel, Patient Voices Matter panel. He lives in Manchester, is a practising Orthodox Jew and lives with several health conditions. In this blog, he explains why he joined the group and what his experience has been so far. Read more

  • PVM blog: Patient Voices Matter is a community and I’m privileged to be a member

    PVM blog: Patient Voices Matter is a community and I’m privileged to be a member

    Sarah Tilsed, Head of Patient Partnership, shares her experiences of being a member of our lived experience adivsory panel Read more

  • PVM Blog: NHS must provide accessible information
  • PVM blog: What Patient Voices Matter is teaching us
  • PVM blog: Why I joined Patient Voices Matter
  • PVM blog: Patient Voices Matter is a community and I’m privileged to be a member
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  1. What we have to say
  2. Your stories

Your stories

PVM Blog: NHS must provide accessible information

PVM Blog: NHS must provide accessible information

Ray is a member of Patient Voices Matter, our lived experience group. He does not feel the NHS is good at listening to patients or providing accessible information. Read more

Posted to: Your stories

Published: 9th May, 2022

Updated: 16th May, 2022

PVM Blog: Cancer diagnosis led to patient advocacy

PVM Blog: Cancer diagnosis led to patient advocacy

Tara developed breast cancer when her children were very young. Her experiences led her to join service user groups, and from there she has spent decades advocating for other patients, including now with Patient Voices Matter Read more

Posted to: Your stories

Published: 9th May, 2022

Updated: 11th May, 2022

PVM blog: What Patient Voices Matter is teaching us

PVM blog: What Patient Voices Matter is teaching us

As you may know, last autumn we formed our lived experience advisory panel, Patient Voices Matter. Since then they've been meeting regular. Our Head of Patient Partnership, Sarah Tilsed, is a member of the group. She's going to be reporting back regularly on what the group are discussing and what the Patients Association is doing to repond to concerns raised. Read more

Posted to: Your stories

Published: 27th April, 2022

Updated: 16th May, 2022

PVM blog: The challenges of booking NHS appointments

PVM blog: The challenges of booking NHS appointments

When you're a carer and patient, arranging medical appointments to suit the family is a challenge - one not helped by NHS admin, says Mo, a member of our Patient Voices Matter group. Read more

Posted to: Your stories

Published: 26th April, 2022

Updated: 16th May, 2022

PVM blog: Why I joined Patient Voices Matter

PVM blog: Why I joined Patient Voices Matter

Chayim is a member of our lived experience advisory panel, Patient Voices Matter panel. He lives in Manchester, is a practising Orthodox Jew and lives with several health conditions. In this blog, he explains why he joined the group and what his experience has been so far. Read more

Posted to: Your stories

Published: 21st March, 2022

Updated: 28th April, 2022

Ask questions to get the most out of shared decision making

Ask questions to get the most out of shared decision making

Adnan cares for his disabled adult son; as part of our work with the General Medical Council to support great use of shared decision making, Adnan shares his tips on getting the most out of a consultation. Read more

Posted to: Your stories

Published: 24th November, 2021

Updated: 19th May, 2022

Shared decision making for long term health conditions

Shared decision making for long term health conditions

Joanne lives with multiple chronic health conditions. Her experience of shared decision making has varied. Read her story. Read more

Posted to: Your stories

Published: 23rd November, 2021

Updated: 19th May, 2022

Making decisions for yourself and your parent

Making decisions for yourself and your parent

We've worked with the General Medical Council to share patients' experience of shared decision making more widely. Alan's story is about his experience as a patient and a carer. Read more

Posted to: Your stories

Published: 22nd November, 2021

Updated: 19th May, 2022

PVM blog: Patient Voices Matter is a community and I’m privileged to be a member

PVM blog: Patient Voices Matter is a community and I’m privileged to be a member

Sarah Tilsed, Head of Patient Partnership, shares her experiences of being a member of our lived experience adivsory panel Read more

Posted to: Your stories

Published: 18th November, 2021

Updated: 28th April, 2022

Being a parent-carer for an adult child

Being a parent-carer for an adult child

Mo Hafeez, from Lancashire, is full-time parent carer for his adult son, Nav. In this guest post, he reflects on managing Nav’s nutritional health. Read more

Posted to: Your stories

Published: 15th October, 2021

Updated: 28th April, 2022

The emotional rollercoaster of being a carer

The emotional rollercoaster of being a carer

Caring for someone with disease-related malnutrition can be challenging, says Ruby Bhatti who lives in West Yorkshire. In this guest post she talks about the emotional rollercoaster, for both patient and carer. Read more

Posted to: Your stories

Published: 13th October, 2021

Updated: 28th April, 2022

The challenges of managing nutritional health

The challenges of managing nutritional health

There are many health conditions that can affect someone’s nutritional health. For Heather Devey, from Bath and North East Somerset, it was treatment for cancer that resulted in her needing nutritional support. Read more

Posted to: Your stories

Published: 12th October, 2021

Updated: 28th April, 2022

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Showing 10 of 12

Latest

  • The Patients Association annual general meeting 2022

    The Patients Association annual general meeting 2022

    Join us to hear about our work in 2021 and plans for the rest of this year, at this year's annual general meeting.

  • The patient voice: The secret weapon against superbugs

    The patient voice: The secret weapon against superbugs

    Last year, we held an advisory board with the pharmaceutical company Pfizer to discuss how patients could be more involved in the fight against superbugs. Highlights from the meeting are now available. They include suggestions on how important patient partnership is when treating patients with serious infections and the need to look at the threat of superbugs from the patient’s point of view.

  • PVM Blog: NHS must provide accessible information

    PVM Blog: NHS must provide accessible information

    Ray is a member of Patient Voices Matter, our lived experience group. He does not feel the NHS is good at listening to patients or providing accessible information.

  • PVM Blog: Cancer diagnosis led to patient advocacy

    PVM Blog: Cancer diagnosis led to patient advocacy

    Tara developed breast cancer when her children were very young. Her experiences led her to join service user groups, and from there she has spent decades advocating for other patients, including now with Patient Voices Matter

Most read

  • Seeing your medical records

    Seeing your medical records

    This page explains how to get copies of your medical records in England and Wales.

  • Next of kin

    Next of kin

    Your medical next of kin is someone you nominate to receive information about your medical care.

  • Helpline - 0800 345 7115

    Helpline - 0800 345 7115

    Need health or social care advice? Call our free and confidential helpline on 0800 345 7115 (Mon-Fri 9.30am and 5pm).

  • You and your dentist

    You and your dentist

    This page is designed to give you more information about finding a dentist and using their services. It includes tips on how to prepare for an appointment, the charges you can expect and how to make a complaint.

  • Making a complaint

    Making a complaint

    Most people are happy with the health and social care they receive. But sometimes things go wrong. If that happens, you need to know how to complain. This guide sets out your rights and offers advice on how to make a complaint.

  • How we see the world

    How we see the world

    We believe that everyone should have access to the best healthcare when they need it most.

  • Long term conditions

    Long term conditions

    About 15 million people in England have a long-term condition. A long-term condition is an illness that cannot be cured. It can usually be controlled with medicines or other treatments.

  • Meet the Board

    Meet the Board

    Meet our Chief Executive, President and Trustees.

  • Report your care

    Report your care

    Our 'Tell us about your care' partnership with the Care Quality Commission (CQC).

  • Make the most of your GP appointment

    Make the most of your GP appointment

    This page is to help you make the most of your GP appointment. It includes tips on how to prepare, what to ask and how to remember the information given to you.

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Accessibility

Accessibility

Read our policy on accessibility for our site Read more

Published: 30th June, 2014

Updated: 24th February, 2022

Author:

Care Home Charter for Medicines

Care Home Charter for Medicines

Our Care Home Charter for Medicines is designed to improve the administration and use of medicines in care homes. Read more

Published: 23rd September, 2019

Updated: 13th May, 2022

Author: Mehdi Juma

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© The Patients Association 2020. All Rights Reserved. The Patients Association is a registered charity in England and Wales (1006733). A company limited by guarantee. Registered company in England and Wales (02620761)

Registered Address:P Block, Northwick Park Hospital, The North West Hospitals NHS Trust, Watford Road, Harrow, Middlesex, HA1 3UJ


        

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