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Ray is a member of Patient Voices Matter, our lived experience group. He does not feel the NHS is good at listening to patients or providing accessible information. Read more
As you may know, last autumn we formed our lived experience advisory panel, Patient Voices Matter. Since then they've been meeting regular. Our Head of Patient Partnership, Sarah Tilsed, is a member of the group. She's going to be reporting back regularly on what the group are discussing and what the Patients Association is doing to repond to concerns raised. Read more
Chayim is a member of our lived experience advisory panel, Patient Voices Matter panel. He lives in Manchester, is a practising Orthodox Jew and lives with several health conditions. In this blog, he explains why he joined the group and what his experience has been so far. Read more
Sarah Tilsed, Head of Patient Partnership, shares her experiences of being a member of our lived experience adivsory panel Read more
Tara developed breast cancer when her children were very young. Her experiences led her to join service user groups, and from there she has spent decades advocating for other patients, including now with Patient Voices Matter Read more
When you're a carer and patient, arranging medical appointments to suit the family is a challenge - one not helped by NHS admin, says Mo, a member of our Patient Voices Matter group. Read more
Adnan cares for his disabled adult son; as part of our work with the General Medical Council to support great use of shared decision making, Adnan shares his tips on getting the most out of a consultation. Read more
Joanne lives with multiple chronic health conditions. Her experience of shared decision making has varied. Read her story. Read more
We've worked with the General Medical Council to share patients' experience of shared decision making more widely. Alan's story is about his experience as a patient and a carer. Read more
Mo Hafeez, from Lancashire, is full-time parent carer for his adult son, Nav. In this guest post, he reflects on managing Nav’s nutritional health. Read more
Caring for someone with disease-related malnutrition can be challenging, says Ruby Bhatti who lives in West Yorkshire. In this guest post she talks about the emotional rollercoaster, for both patient and carer. Read more
There are many health conditions that can affect someone’s nutritional health. For Heather Devey, from Bath and North East Somerset, it was treatment for cancer that resulted in her needing nutritional support. Read more