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  • “I love the NHS, but…” Preventing needless harms caused by poor communication in the NHS

    “I love the NHS, but…” Preventing needless harms caused by poor communication in the NHS

    We worked with Engage Britain and the PMA on a project that engaged nearly 2,000 members of the public, patients and staff to learn about their experiences of the NHS. The work found that poor NHS communication is one the public’s biggest issues with the NHS. Read the report and its recommendations. Read more

  • New report on the relationship between the public, their data, and the health and care system

    New report on the relationship between the public, their data, and the health and care system

    Our new report looks into the relationship between patients, their data, and the health and care system. It shows patients recognise the potential data use has to enhance healthcare quality but also that to realise this potential, patients’ concerns about how their data are handled must be addressed. Read more

  • Whose needs are going unmet and what should be done about it?

    Whose needs are going unmet and what should be done about it?

    Earlier this year, we spoke to patients living in left behind neighbourhoods about their health needs. Here's what we heard. Read more

  • Removing barriers to shared decision making

    Removing barriers to shared decision making

    A project in Nottingham and Nottinghamshire ICB between the Patients Association, the Patient Information Forum and My Life Choices to develop patient information that supports people with hip, knee, and joint pain to make treatment decisions. Read more

  • “I love the NHS, but…” Preventing needless harms caused by poor communication in the NHS
  • New report on the relationship between the public, their data, and the health and care system
  • Whose needs are going unmet and what should be done about it?
  • Removing barriers to shared decision making
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  1. What we have to say
  2. Reports and surveys

Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

“I love the NHS, but…” Preventing needless harms caused by poor communication in the NHS

“I love the NHS, but…” Preventing needless harms caused by poor communication in the NHS

We worked with Engage Britain and the PMA on a project that engaged nearly 2,000 members of the public, patients and staff to learn about their experiences of the NHS. The work found that poor NHS communication is one the public’s biggest issues with the NHS. Read the report and its recommendations. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 27th November, 2023

New report on the relationship between the public, their data, and the health and care system

New report on the relationship between the public, their data, and the health and care system

Our new report looks into the relationship between patients, their data, and the health and care system. It shows patients recognise the potential data use has to enhance healthcare quality but also that to realise this potential, patients’ concerns about how their data are handled must be addressed. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 22nd September, 2023

Updated: 27th November, 2023

Whose needs are going unmet and what should be done about it?

Whose needs are going unmet and what should be done about it?

Earlier this year, we spoke to patients living in left behind neighbourhoods about their health needs. Here's what we heard. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 6th September, 2023

Updated: 13th October, 2023

Removing barriers to shared decision making

Removing barriers to shared decision making

A project in Nottingham and Nottinghamshire ICB between the Patients Association, the Patient Information Forum and My Life Choices to develop patient information that supports people with hip, knee, and joint pain to make treatment decisions. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 26th April, 2023

Updated: 2nd May, 2023

Survey of patients paints a mixed picture of experiences

Survey of patients paints a mixed picture of experiences

The patient experience winter survey results are in and they show some good, some average and some bad experiences. It seems clear to us that the crisis in the NHS continues to affect patients' experience of care. Read more. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 16th March, 2023

Updated: 17th April, 2023

Patient Safety Commissioner – the first 100 days

Patient Safety Commissioner – the first 100 days

When Dr Henrietta Hughes became England’s first ever Patient Safety Commissioner, she committed to publishing a report about her first 100 days in the role. We are delighted to publish that report on her behalf. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 2nd February, 2023

Updated: 29th August, 2023

Research shows patients want more control over how their health data are shared

Research shows patients want more control over how their health data are shared

More than a million people opted out of sharing their GP data when NHS Digital announced its GP Data for Research and Planning programme in 2021. This report explors why patients were so concerned and what should be done to improve confidence. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 25th January, 2023

Updated: 8th February, 2023

Transforming outpatient services for patients

Transforming outpatient services for patients

We supported NHS England to improve patients’ experience of outpatient services, focusing on GP referrals to hospitals. The patient panel and focus group we brought together enabled NHS England to hear the perspectives of diverse communities and work with them to craft recommendations to improve referrals for all patients. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 22nd November, 2022

Updated: 18th July, 2023

Time to choose - patient choice and the NHS backlog

Time to choose - patient choice and the NHS backlog

We worked with the Independent Healthcare Providers Network (IHPN) to investigate the role patient choice could play in tackling long waiting lists for elective care. Based on patient surveys, focus groups, and data analysis, the final report clearly showed patients in England were not clear about their right to choose where they receive their treatment. Many of the recommendations made in the report have been accepted and implemented by NHS England. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 22nd July, 2022

Updated: 18th July, 2023

Patients ability to work with health professionals undermined by current crisis

Patients ability to work with health professionals undermined by current crisis

Doctors, nurses and other health professionals practice and support shared decision making. But, as our latest reports lays out, there are many obstacles preventing them for working this way with patients on a daily basis. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 20th June, 2022

Updated: 29th January, 2023

The patient voice: The secret weapon against superbugs

The patient voice: The secret weapon against superbugs

Last year, we held an advisory board with the pharmaceutical company Pfizer to discuss how patients could be more involved in the fight against superbugs. Highlights from the meeting are now available. They include suggestions on how important patient partnership is when treating patients with serious infections and the need to look at the threat of superbugs from the patient’s point of view. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 11th May, 2022

Updated: 30th September, 2022

Fears for wound care patients after COVID-19 pandemic

Fears for wound care patients after COVID-19 pandemic

One in 50 people in the UK lives with a chronic wound but wound care services are not something we talk about very often. This report, we hope, can start a conversation about the current state of wound care services in the UK, and how they can be improved. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 5th May, 2022

Updated: 30th August, 2022

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Latest

  • Developing GP practice patient groups

    We've been working with patient participation groups in Hertfordshire and West Essex for more than a year now. In this workshop, the team review progress to date.

  • Patients Association statement on planned strike action by junior doctors

    Patients Association statement on planned strike action by junior doctors

    Festive season strikes will strike fear into patients waiting for care. We urge both parties to return to talks.

  • Understanding changes in primary care: your wider general practice team

    Understanding changes in primary care: your wider general practice team

    In this webinar, we’ll look at some of the new professionals patients may see in general practice, such as social prescriber, paramedic and mental health practitioner.

  • Changes in primary care, understanding the role of the reception team

    We had a great panel join us to talk about the plan to recover access to primary care and talk about the new reception team.

Most read

  • Seeing your medical records

    Seeing your medical records

    This page explains how to get copies of your medical records in England and Wales.

  • You and your dentist

    You and your dentist

    This page is designed to give you more information about finding a dentist and using their services. It includes tips on how to prepare for an appointment, the charges you can expect and how to make a complaint.

  • Next of kin

    Next of kin

    Your medical next of kin is someone you nominate to receive information about your medical care.

  • Making a complaint

    Making a complaint

    Most people are happy with the health and social care they receive. But sometimes things go wrong. If that happens, you need to know how to complain. This guide sets out your rights and offers guidance on how to make a complaint.

  • Helpline - 0800 345 7115

    Helpline - 0800 345 7115

    Need information on health or social care? Call our free and confidential helpline on 0800 345 7115 (Mon-Fri 9.30am and 5pm).

  • Long term conditions

    Long term conditions

    About 15 million people in England have a long-term condition. A long-term condition is an illness that cannot be cured. It can usually be controlled with medicines or other treatments.

  • How we see the world

    How we see the world

    We believe that everyone should have access to the best healthcare when they need it most.

  • Make the most of your GP appointment

    Make the most of your GP appointment

    This page is to help you make the most of your GP appointment. It includes tips on how to prepare, what to ask and how to remember the information given to you.

  • Governance

    Governance

    Meet our Board of Trustees and Chief Executive.

  • Self-management

    Self-management

    Self-management aims to empower people with long-term conditions to take control of their treatment.  It is a set of approaches which help you manage your own health. Find out more in our simple guide to self-management.

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Accessibility

Accessibility

Read our policy on accessibility for our site Read more

Published: 30th June, 2014

Updated: 24th February, 2022

Author:

Care Home Charter for Medicines

Care Home Charter for Medicines

Our Care Home Charter for Medicines is designed to improve the administration and use of medicines in care homes. Read more

Published: 23rd September, 2019

Updated: 13th May, 2022

Author: Mehdi Juma

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© The Patients Association 2022. All Rights Reserved. The Patients Association is a registered charity in England and Wales (1006733). A company limited by guarantee. Registered company in England and Wales (02620761)

Registered Address:P Block, Northwick Park Hospital, The North West Hospitals NHS Trust, Watford Road, Harrow, Middlesex, HA1 3UJ


          

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