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We worked with Engage Britain and the PMA on a project that engaged nearly 2,000 members of the public, patients and staff to learn about their experiences of the NHS. The work found that poor NHS communication is one the public’s biggest issues with the NHS. Read the report and its recommendations. Read more
Our new report looks into the relationship between patients, their data, and the health and care system. It shows patients recognise the potential data use has to enhance healthcare quality but also that to realise this potential, patients’ concerns about how their data are handled must be addressed. Read more
Earlier this year, we spoke to patients living in left behind neighbourhoods about their health needs. Here's what we heard. Read more
A project in Nottingham and Nottinghamshire ICB between the Patients Association, the Patient Information Forum and My Life Choices to develop patient information that supports people with hip, knee, and joint pain to make treatment decisions. Read more
Patients Association reports cover a range of topics across health and social care.
Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.
Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.
Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.
The patient experience winter survey results are in and they show some good, some average and some bad experiences. It seems clear to us that the crisis in the NHS continues to affect patients' experience of care. Read more. Read more
When Dr Henrietta Hughes became England’s first ever Patient Safety Commissioner, she committed to publishing a report about her first 100 days in the role. We are delighted to publish that report on her behalf. Read more
More than a million people opted out of sharing their GP data when NHS Digital announced its GP Data for Research and Planning programme in 2021. This report explors why patients were so concerned and what should be done to improve confidence. Read more
We supported NHS England to improve patients’ experience of outpatient services, focusing on GP referrals to hospitals. The patient panel and focus group we brought together enabled NHS England to hear the perspectives of diverse communities and work with them to craft recommendations to improve referrals for all patients. Read more
We worked with the Independent Healthcare Providers Network (IHPN) to investigate the role patient choice could play in tackling long waiting lists for elective care. Based on patient surveys, focus groups, and data analysis, the final report clearly showed patients in England were not clear about their right to choose where they receive their treatment. Many of the recommendations made in the report have been accepted and implemented by NHS England. Read more
Doctors, nurses and other health professionals practice and support shared decision making. But, as our latest reports lays out, there are many obstacles preventing them for working this way with patients on a daily basis. Read more
Last year, we held an advisory board with the pharmaceutical company Pfizer to discuss how patients could be more involved in the fight against superbugs. Highlights from the meeting are now available. They include suggestions on how important patient partnership is when treating patients with serious infections and the need to look at the threat of superbugs from the patient’s point of view. Read more
One in 50 people in the UK lives with a chronic wound but wound care services are not something we talk about very often. This report, we hope, can start a conversation about the current state of wound care services in the UK, and how they can be improved. Read more