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  • The patient voice: The secret weapon against superbugs

    The patient voice: The secret weapon against superbugs

    Last year, we held an advisory board with the pharmaceutical company Pfizer to discuss how patients could be more involved in the fight against superbugs. Highlights from the meeting are now available. They include suggestions on how important patient partnership is when treating patients with serious infections and the need to look at the threat of superbugs from the patient’s point of view. Read more

  • Fears for wound care patients after COVID-19 pandemic

    Fears for wound care patients after COVID-19 pandemic

    One in 50 people in the UK lives with a chronic wound but wound care services are not something we talk about very often. This report, we hope, can start a conversation about the current state of wound care services in the UK, and how they can be improved. Read more

  • Patient experience before the omicron wave: the storm before the storm

    Patient experience before the omicron wave: the storm before the storm

    We have warned of how the health emergency has disrupted the relationship between patients and the NHS. Our latest survey shows things have worsened for some patients, and we worry for the long-term consequences. Read more

  • The patient voice: The secret weapon against superbugs
  • Fears for wound care patients after COVID-19 pandemic
  • Patient experience before the omicron wave: the storm before the storm
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  1. What we have to say
  2. Reports

Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

The patient voice: The secret weapon against superbugs

The patient voice: The secret weapon against superbugs

Last year, we held an advisory board with the pharmaceutical company Pfizer to discuss how patients could be more involved in the fight against superbugs. Highlights from the meeting are now available. They include suggestions on how important patient partnership is when treating patients with serious infections and the need to look at the threat of superbugs from the patient’s point of view. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 11th May, 2022

Updated: 12th May, 2022

Fears for wound care patients after COVID-19 pandemic

Fears for wound care patients after COVID-19 pandemic

One in 50 people in the UK lives with a chronic wound but wound care services are not something we talk about very often. This report, we hope, can start a conversation about the current state of wound care services in the UK, and how they can be improved. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 5th May, 2022

Patient experience before the omicron wave: the storm before the storm

Patient experience before the omicron wave: the storm before the storm

We have warned of how the health emergency has disrupted the relationship between patients and the NHS. Our latest survey shows things have worsened for some patients, and we worry for the long-term consequences. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 27th January, 2022

Updated: 3rd May, 2022

Making shared decision making everyday practice

Making shared decision making everyday practice

Our report finds shared decision making provides benefits to patients and the health service. But patients, and the professionals, face many barriers in making it work in practice. We make several recommendations on how to make shared decision making a reality. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 16th July, 2021

Updated: 19th May, 2022

Author: Maya Anaokar

Pandemic Patient Experience II: Delays and cancellations

Pandemic Patient Experience II: Delays and cancellations

Most respondents to our survey had experienced delayed or cancelled appointments. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 7th May, 2021

Updated: 29th April, 2022

Pandemic Patient Experience II: Staying away from care?

Pandemic Patient Experience II: Staying away from care?

We found that it was more common during the pandemic for patients to try to access care but struggle than to stay away voluntarily, although both happened. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 6th May, 2021

Updated: 29th April, 2022

Pandemic Patient Experience II: NHS 111

Pandemic Patient Experience II: NHS 111

Our survey showed a modest increase in use of NHS 111 during the pandemic, and a mix of patient experiences - more positive than negative, but still with some cause for concern. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 5th May, 2021

Updated: 29th April, 2022

Pandemic Patient Experience II: Access to services

Pandemic Patient Experience II: Access to services

Patients told us about the difficulties they encountered accessing care during the pandemic, with GP services a particular problem. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 4th May, 2021

Updated: 29th April, 2022

Pandemic Patient Experience II: Vaccinations

Pandemic Patient Experience II: Vaccinations

Patient feedback about the vaccination programme has been very positive, with most respondents to our survey finding appointments easy to arrange and reassuring to experience. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 3rd May, 2021

Updated: 29th April, 2022

Pandemic Patient Experience II: Shielding

Pandemic Patient Experience II: Shielding

We found that many people chose to shield themselves without having been told to do so, and not in line with official NHS advice. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 30th April, 2021

Updated: 29th April, 2022

Pandemic Patient Experience II: what patients told us

Pandemic Patient Experience II: what patients told us

An overview of the findings of our report Pandemic Patient Experience II. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 29th April, 2021

Updated: 29th April, 2022

Pandemic Patient Experience II

Pandemic Patient Experience II

Our second survey of patients' experiences during the COVID-19 pandemic. Read more

Posted to: Reports

Patients Association reports cover a range of topics across health and social care.  

Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.

Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.

Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.  

Published: 29th April, 2021

Updated: 29th April, 2022

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Latest

  • The Patients Association annual general meeting 2022

    The Patients Association annual general meeting 2022

    Join us to hear about our work in 2021 and plans for the rest of this year, at this year's annual general meeting.

  • The patient voice: The secret weapon against superbugs

    The patient voice: The secret weapon against superbugs

    Last year, we held an advisory board with the pharmaceutical company Pfizer to discuss how patients could be more involved in the fight against superbugs. Highlights from the meeting are now available. They include suggestions on how important patient partnership is when treating patients with serious infections and the need to look at the threat of superbugs from the patient’s point of view.

  • PVM Blog: NHS must provide accessible information

    PVM Blog: NHS must provide accessible information

    Ray is a member of Patient Voices Matter, our lived experience group. He does not feel the NHS is good at listening to patients or providing accessible information.

  • PVM Blog: Cancer diagnosis led to patient advocacy

    PVM Blog: Cancer diagnosis led to patient advocacy

    Tara developed breast cancer when her children were very young. Her experiences led her to join service user groups, and from there she has spent decades advocating for other patients, including now with Patient Voices Matter

Most read

  • Seeing your medical records

    Seeing your medical records

    This page explains how to get copies of your medical records in England and Wales.

  • Next of kin

    Next of kin

    Your medical next of kin is someone you nominate to receive information about your medical care.

  • Helpline - 0800 345 7115

    Helpline - 0800 345 7115

    Need health or social care advice? Call our free and confidential helpline on 0800 345 7115 (Mon-Fri 9.30am and 5pm).

  • Making a complaint

    Making a complaint

    Most people are happy with the health and social care they receive. But sometimes things go wrong. If that happens, you need to know how to complain. This guide sets out your rights and offers advice on how to make a complaint.

  • You and your dentist

    You and your dentist

    This page is designed to give you more information about finding a dentist and using their services. It includes tips on how to prepare for an appointment, the charges you can expect and how to make a complaint.

  • How we see the world

    How we see the world

    We believe that everyone should have access to the best healthcare when they need it most.

  • Meet the Board

    Meet the Board

    Meet our Chief Executive, President and Trustees.

  • Long term conditions

    Long term conditions

    About 15 million people in England have a long-term condition. A long-term condition is an illness that cannot be cured. It can usually be controlled with medicines or other treatments.

  • Report your care

    Report your care

    Our 'Tell us about your care' partnership with the Care Quality Commission (CQC).

  • Patients Association Nutrition Checklist

    Patients Association Nutrition Checklist

    The Patients Association Nutrition Checklist is a simple tool to help raise awareness and identify the potential risk of undernutrition by encouraging conversations with those who make be at risk. It also offers guidance on next steps, if someone is at risk. There are versions for patients and professionals.

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Accessibility

Accessibility

Read our policy on accessibility for our site Read more

Published: 30th June, 2014

Updated: 24th February, 2022

Author:

Care Home Charter for Medicines

Care Home Charter for Medicines

Our Care Home Charter for Medicines is designed to improve the administration and use of medicines in care homes. Read more

Published: 23rd September, 2019

Updated: 13th May, 2022

Author: Mehdi Juma

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© The Patients Association 2020. All Rights Reserved. The Patients Association is a registered charity in England and Wales (1006733). A company limited by guarantee. Registered company in England and Wales (02620761)

Registered Address:P Block, Northwick Park Hospital, The North West Hospitals NHS Trust, Watford Road, Harrow, Middlesex, HA1 3UJ


        

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