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This survey found that three quarters of people said delays negatively affected their quality of life. Read more
This project explored the experience of patients when purchasing medicines from unregulated online sources, including website and social media. Lilly UK provided sponsorship funding for this project and has had no influence on the project or the development of any materials for this project. Read more
The Patients Association and the Royal College of GPs have launched a joint report calling for the NHS to be easier to navigate - as well as improving access to GP care and continuity. Read more
The report concludes that while fair reward, recognition, and remuneration is vital for meaningful patient engagement, they represent only one part of a broader approach that is needed. Read more
Patients Association reports cover a range of topics across health and social care.
Through listening to patients, their families and the professionals caring for them, we address issues around access to services, patient engagement, quality of care and patient safety.
Our focus is on improving patient experience, and recommendations in our reports help to form the basis of our future campaigns.
Older reports not published on this website are available on request from [email protected], where we still hold them. Please note that the Patients Association's archives up to c.1996 are held by the Wellcome Collection.
Across six focus groups, patients told us about a system that too often places the burden of communication on patients and their communities rather than taking responsibility for it itself. Read more
This report presents the findings of a project to develop a toolkit to improve shared decision-making in the care pathway for chronic angina treated with planned coronary angioplasty (heart stents). Read more
Our response to the MHRA’s call for evidence on regulating AI in healthcare, based on a UK-wide patient survey. Read more
The independent Leng Review funded to the Patients Association to deliver this project to help ensure that it’s work and recommendations are informed by the views and experiences of patients and carers. Read more
This report explores one of the most persistent challenges patients face: poor care coordination. Read more
The Patients Association and the Royal College of Physicians (RCP) have published a joint report setting out a bold new vision for reforming outpatient services in the NHS over the next decade. Read more
Rachel Power, Tara Donnelly and Prof Alf Collins on transforming care for those living with long-term conditions through technology-enabled support. Read more
This report focuses on patients with blood disorders and/or cancer who experience health inequalities and what can be done to improve health equity. Read more