Engagement and coproduction

2024 - Letter to the The Rt Hon. the Lord Darzi of Denham OM KBE
The Secretary of State for Health and Care has appointed Lord Darzi to conduct an independent assessment of the state of the NHS in England. We have written to him to offer to share the wealth of data we have on patients' and carers' experiences, and to ask him to ensure he partners with patients during the assessment.

2022 - Consultation response - Working in partnership with people and communities, NHS England
NHS England's statutory guidance for Integrated Care Boards, NHS Trusts, and NHS Foundation Trusts presents positive ambitions and lays out the terms of the NHS sharing power with local communities. We welcome these ambitions, but they will require a major change in the NHS’s culture and operation at every level, which may take many years to embed.

2021 - Consultation response - NICE guideline on shared decision making
NICE's guideline on shared decision making is a welcome development in helpling to secure full involvement of patients in decisions about their care.

Latest

Empowering patients as equal partners in care

Why aren't patients treated as equals in their own care? In this webinar, Prof Havi Carel will discuss why some healthcare professionals ignore, dismiss, or explain away patients' testimonies about their health.
Joining services around patients: the role of data

Patients recognise the potential for data to improve their care. But there are concerns about privacy and safety of patient data. Ming Tang, Chief Data and Analytics Officer at NHS England joins this webinar to discuss the potential of data and safeguards.
Implementing shared decision making in practice

Join our webinar about how to make shared decision making standard practice across the whole of healthcare. Hear from our Trustee Prof Alf Collins, former national director for personalised care.
Health and social care’s critical friend

This week Healthwatch England published a report showing that 1.5 million working-age disabled people in England are missing out on social care. In this article, member Chris Orchin, who was Chair of Healthwatch Isle of Wight for nearly a decade, explains the work the organisation does.

We share patients' priorities with the new Government

We have written to the Prime Minister, the Secretary of State for Health and Social Care, and to Professor Lord Darzi to let them know what patients' concerns are.
Co-production is for life, not just a week

Debs is a member of our helpline team, a patient, a carer, and a member of her local co-production group. In this article, she reflects on Co-production Week.
Making the availability of quality care a national priority

Seize this general election as the moment to be ambitious about health and care.
The importance for two-way communication

Patients tell us poor NHS communication has a real impact on their health and well-being. That’s why genuine two-communication between the NHS and patients is one of our election demands.
Ensuring the NHS has the workforce patients deserve

In our general election manifesto we call on the next Government to pledge to fund and deliver the existing NHS workforce plan in full. Here’s why that’s important.
Improving health equity for people living with cancer and blood disorders

Work with us to reduce health disparities and improve access to quality care for under-served populations living with cancer and blood disorders.
Supporting patient engagement and revitalising Patient Participation Groups

We have completed an exciting initiative in partnership with the Hertfordshire and West Essex Integrated Care Board (ICB) to support patient engagement and revitalise patient participation groups post pandemic.
New project focuses on improving health equity

Bristol Myers Squibb awards the Patients Association grant to research how to improve access to healthcare for patients affected by health inequalities.
The next stage of our work gathering patient insights on data

The Patients Association is beginning a project that will give patients the chance to ask questions about the software that will underpin the Federated Data Platform. We detail more about this work.
Prioritising patient partnership: A call to action for the next Government

In this general election year, we’re calling on the next Government to treat patients as true partners in their health as a key way to improve patients’ experiences of healthcare.

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