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We’ve been working with the Royal College of Physicians and NHS England on the development of a new outpatient strategy, ensuring patients contribute to the redesign and delivery. We involved people who regularly use outpatients to discuss what works well, what could be improved, and access. Read more
If you missed our event, Breaking down barriers to shared decision making, you can watch a recording of the webinar online. Read more
A project in Nottingham and Nottinghamshire ICB between the Patients Association, the Patient Information Forum and My Life Choices to develop patient information that supports people with hip, knee, and joint pain to make treatment decisions. Read more
Watch the Shared decision making – examples of great practice, webinar, part of patient partnership. You can also read the slides that were presented. Read more
A collection of our reports, advice and information related to shared decision making.
When patients and doctors work together to decide treatment options, this is shared decision making. Working in this way provides benefits to patients and the health service. As an organisation, we would like to get more patients and doctors to use shared decision making because it is a good way of delivering care that meets the needs of patients.
We hope you find our work interesting. If you have any questions or feedback please email [email protected]
Our lived experience advisory panel, Patient Voices Panel, has brought together 10 patients from different backgrounds who meet to learn and discuss their experiences of healthcare. The panel is run as under Deep Democracy principles. In this article, we explain how Deep Democracy supports patient partnership and shared decision making. Read more
The Patients Association Nutrition Checklist is a simple tool to help raise awareness and identify the potential risk of undernutrition by encouraging conversations with those who make be at risk. It also offers guidance on next steps, if someone is at risk. There are versions for patients and professionals. Read more
We worked with the Independent Healthcare Providers Network (IHPN) to investigate the role patient choice could play in tackling long waiting lists for elective care. Based on patient surveys, focus groups, and data analysis, the final report clearly showed patients in England were not clear about their right to choose where they receive their treatment. Many of the recommendations made in the report have been accepted and implemented by NHS England. Read more
Doctors, nurses and other health professionals practice and support shared decision making. But, as our latest reports lays out, there are many obstacles preventing them for working this way with patients on a daily basis. Read more
Our Health Our Knowledge is a website that supports patients to make choices about their healthcare. Patients Association member, Brian Finney has been involved in the project and in this blog explains how it can benefit patients. Read more
You have the right to be involved in making choices about your medical treatment, the medicines you take and any operations you have. Read more
But workforce crisis prevents patients from participating fully in decisions about their care Read more
Adnan cares for his disabled adult son; as part of our work with the General Medical Council to support great use of shared decision making, Adnan shares his tips on getting the most out of a consultation. Read more
Our report finds shared decision making provides benefits to patients and the health service. But patients, and the professionals, face many barriers in making it work in practice. We make several recommendations on how to make shared decision making a reality. Read more
If you are considering private care, maybe for the first time, we have worked with the Independent Healthcare Providers Network to create information to help you understand how to access and pay for private healthcare. Read more
Joanne lives with multiple chronic health conditions. Her experience of shared decision making has varied. Read her story. Read more
We've worked with the General Medical Council to share patients' experience of shared decision making more widely. Alan's story is about his experience as a patient and a carer. Read more
Recording of our 2021 webinar on shared decision making. Read more