Child under nutrition project

The issue of malnutrition amongst children has traditionally, although not exclusively, focused on malnutrition in the developing world. However, malnutrition or under-nutrition in children in the UK is an increasing problem, which this report looks at in more detail and highlights recommendations into what needs to be done to improve this.

Read the full report

Transforming the cycle of cancer care

At the end of 2016, our Chief Executive led a panel of experts in a discussion to address the negative cycle of cancer care that can sometimes exist in the UK. The Patients Association is committed to ensuring that the NHS provides the best service possible for patients, through collaborative working that identifies best practice and cost efficiencies.

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CARE Campaign

Our campaign is based on the four most frequent concerns that we receive from patients: not being helped to go the toilet; not given sufficient pain relief; not given sufficient nutritional intake; and inadequate communication (e.g. call bells being ignored). Our hallmark campaign recognises that everyone who goes into hospital or a care home is entitled to these fundamental aspects of care.

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Speak the lingo: understanding the health & social care system

Do you know the difference between Accident and Emergency and Urgent Care? Ever sat in a waiting room, staring curiously at the sign and wondered what it means? Not quite sure why you might go to a walk-in-centre as opposed to making an appointment with your GP? When do you call 111 as opposed to 999 and can when can you speak to your pharmacist as opposed to waiting in a queue to speak to the nurse? All of these questions are questions our helpline try to help people understand, but many of us still remain in the dark to these questions. That’s why The Patients Association are calling for better health and social care education and awareness raising, so that we can all be better champions of our own health.

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Our rights. Our NHS.

The NHS constitution and your rights.

The NHS Constitution establishes the principles and values of the NHS in England was first published in 2009. The Constitution also sets out the rights and responsibilities of patients, the public and staff within the NHS. The Patients Association believes that the NHS Constitution must remain a key resource in enabling patients to exercise their rights to access professional standards of care, access certain services commissioned by NHS bodies within maximum waiting times and be treated with dignity and respect among others.

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Access to GP Appointments 

Our Primary Care Review published in 2013, discovered that almost two-thirds of people are waiting longer than 48 hours to book a GP appointment (60.5%) and the majority (83.8%) were waiting more than 24 hours on average before being able to secure an appointment. In addition to this, over half of respondents stated that they felt that booking a GP appointment was either “very difficult” or “could have been easier”.

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Primary Care Review

Patient interactions with GPs and primary care account for 90% of patient interactions with the NHS. We reviewed how accessible and understandable accessing primary care in the community was for patients and their families.

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STPs: the fight for a stake in our future

NHS organisations have been told to develop ‘place-based plans’ to meet the future needs of their local population. These have been called  Sustainability and Transformation Plans, or STPs. STPs were presented in the NHS shared planning guidance 16/17 – 20/21 and they are meant to accelerate the implementation of the Five Year Forward View. We believe there has not be sufficient information provided to patients about what STPs are, nor adequate consultation and engagement with the public on these plans, and that is unacceptable. Join our campaign and have your say over the future of health and social care in England.

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Putting Patients First

The Patients Association has released an independent report that identifies in-patient food, drink and meal service preferences while in hospital. The report entitled ‘Putting Patients First’ provides a patient-centred insight into the experience of patient meals, which is supported by a series of recommendations for food service providers and hospitals to help ensure patients are getting what they want and need.

Download the full report

Care Home Charter for Swallowing and Medicines

This Charter identifies key pledges that both patients and health care professionals will abide by whilst in a care setting, focussing on patients who experience swallowing difficulties.

Download a draft the Care Home Charter for Swallowing and Medicines

A discussion on novel biologic and biosimilar medicines

Through the group’s national helpline, which captures people’s experiences of the health service, The Patients Association has become aware of the importance of patient involvement in the use of biologic and biosimilar medicines in their treatment.

Read the full report

Time to Act: Inquiry into Hospital-Acquired Infections and Antimicrobial Resistance

The rise in the incidence of healthcare-associated infections (HCAI) and the increasing prevalence of antimicrobial resistance (AMR) in the UK is a clear cause for concern. We urge the Government, healthcare providers, academics and industry to work together to combat the growing economic and human costs of inadequate infection control.

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Nutrition Checklist Project

It is estimated that there are more than three million people in the UK who are malnourished or at risk of malnourishment. The Patients Association has carried out a review of policy, practice and patient views in relation to nutrition, malnutrition and the hospital discharge process and established a set of recommendations to help reduce the incidence of malnutrition. This Patients Association’s paper identifies a gap between policy and practice and the need to raise awareness of the issues with both professionals, patients and relatives.

Read the full report

Download the Nutrition Checklist

Under the scan: patients’ views of X-rays and scans in the UK

August 3, 2016  

The Patients Association has produced a joint report with the Royal Colleges of Radiologists. The report looked into the patient experience of undergoing scans and X-rays and how and when the results were given to them.  

Read the full report here: RCR Under the scan Report 

Antimicrobial Resistance – A Patient Safety Issue Report

May 12, 2016  

The Patients Association’s report assesses whether Clinical Commissioning Groups are fulfilling their stewardship responsibilities in the battle against antimicrobial resistance. Patients Association – Antimicrobial Resistance a Patient Safety Issue 

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Survey of medicines related care of residents with dysphagia in care homes

January 13, 2016

A new report from the Patients Association called ‘Survey of medicines related care of residents with dysphagia in care homes’ has found as many as 50% of residents are affected by swallowing difficulties (dysphagia), which can make tablets difficult or even impossible to swallow. 

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Waiting Times Report: Crunchtime

July 25, 2015

This report demonstrates a wide variation in waiting times across England, with the post-code distribution as stark as ever. Overall, we are seeing increasingly long waiting times for these procedures.

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Report: Straight to the Point

June 29, 2015

This report was commissioned by Alere International, with research and project management support from Munro & Forster, a communications consultancy. A multidisciplinary panel of leading researchers and healthcare experts met to reach a consensus about the most effective and efficient means to implement CRP POCT in the NHS.

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Report: Time to Act – Urgent Care and A&E: the patient perspective

June 3, 2015

The NHS aims to put patients at the centre of everything that it does. Indeed,the NHS Constitution provides rights to patients to be able to access appropriate services when required. As patients have no control over when they are sick, they require prompt and easy access to a range of essential healthcare services whenever they…

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Full Report: ‘Why our NHS should listen and be human’

February 15, 2015

Patients Association Themes Report: Why our NHS should listen and be human: This is what the public are telling us To view the full report, follow the link: Themes Report February 2015 The Patients Association has today published a major new report highlighting that far too many patients are still experiencing unacceptable standards of care within the health …

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Manifesto: A care system fit for patients

February 5, 2015

The Patients Association launch manifesto Listening to news stories about the NHS over the last two decades, you would be forgiven for thinking it is in perpetual crisis. However, given with the scale of the challenges facing the NHS, it is hard not to believe it could be at ‘breaking point’. The recent ‘Five Year Forward View’ …

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PHSO Report and formal Letter to Sec. of State

January 12, 2015

The Patients Association, in their report on the  Parliamentary and Health Service Ombudsman, calls on the organisation to establish a truly independent, transparent and people’s Ombudsman. To view the report in its entirety, please click here.   From the Patients Association press release on the report: The PHSO is failing families, leaving them distressed and totally worn …

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Complaints Charter and Report

January 9, 2015

One year on from the Clwyd-Hart report, the NHS complaints system still is not fit for purpose, despite numerous calls for reform, says new report from the Patients Association. Click here to read the full report on the cumbersome complaints system. A Plea from Patients and the Public – Person Friendly Charter The Patients Association launches a …

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Report on the NHS Constitution

December 19, 2014

The Patients Association has today released its latest report on patient and public awareness of the NHS Constitution. NHS Constitution Report – Final The NHS Constitution is a single document covering the principles and values of the NHS, as well the rights and responsibilities of patients and staff within the NHS. The most important patient rights relevant …

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Child Malnutrition Report

November 20, 2014

In early 2014, the Patients Association began a comprehensive project looking at child malnutrition in the UK. To view our final report on the topic, please click here: Child Malnutrition in the UK

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Report: Care data

November 11, 2014

Based on written and oral evidence collected over two phases in 2014, organised by the Patients Association and chaired by the All Party Parliamentary Group for Patient and Public Involvement in Health and Social Care.

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Handling Complaints with a Compassionate Human Touch

October 12, 2014

One year on from the Clwyd-Hart report, the NHS complaints system still is not fit for purpose, despite numerous calls for reform, says new report from the Patients Association.

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Waiting Times Report IV (2014)

July 4, 2014

The Patients Association has released its fourth annual report on hospital waiting times for surgical procedures in England, revealing inconsistent reporting by hospital trusts, unacceptable waiting times and poor patient experiences. The report highlights poor performance in the NHS and negative patient experiences and, once again, shows significant variations in waiting times across England, suggesting a …

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GP Checklist Report

October 13, 2013

This project, piloting the GP Checklist, has developed from two previous reports published by the Patients Association. In 2010 , Information? What Information? highlighted the lack of information that patients feel is available for them.

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Waiting Times Report III (2013)

October 7, 2013

This is the Patients Association’s third annual review into elective surgical procedures in the UK. The report shows a mixed picture, with the trend of declining numbers of operations and longer waiting times being reversed for some procedures, but increasing in others.

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Primary Care: Access Denied?

January 3, 2013

Government reforms seek to build a new system upon the foundations of co-production, shared decision making and the ethos of “no decision about me without me”. However, if these concepts are to become more than just words, they will need to be supported by a knowledgeable and empowered patient able to understand and properly access …

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Partners in Care 

November 27, 2012

Foreword Katherine Murphy, Chief Executive of the Patients Association At the Patients Association we hear many uplifting accounts of excellent NHS and Social Care. Our much missed late President, Claire Rayner, received some truly exemplary care when she was looked after with genuine compassion and consideration. Unfortunately, however, all too often we hear distressing accounts on a …

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Rolling the Dice: Could IPC be a victim of its own success?

October 19, 2012

A new report published today by The Patients Association is calling for a renewed focus on infection prevention and control services (IPS) across the NHS. The survey of NHS staff found that almost all felt improvements in safety and outcomes had been delivered in recent years as a result of the high profile rise in …

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Involving Patients in Commissioning: No decision about me, without me?

October 9, 2012

Involving patients in the design and evaluation of the operation of Clinical Commissioning Groups is essential in ensuring that they are fit for purpose and properly reflect the needs of the communities they serve. Bringing together expertise from over 20 Clinical Commissioning Groups from across the country, the Patients Association published a Blueprint for patient and …

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Patients and GPs – Partners in Care?

September 17, 2012

Foreword Katherine Murphy, Chief Executive of the Patients Association When the media, charities and decision makers talk about the areas in which the NHS fails patients their focus is typically on the areas of acute or adult social care. Yet nine out of every ten contacts that a patient has with the NHS will be through the primary …

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The Waiting Game – 2012 Cuts Report

August 11, 2011

This piece of research showed a dramatic increase in waiting times for surgical procedures and a decline in the number of operations being carried out. The figures cast serious doubt on claims by NHS decision makers that waiting times are falling, and has lead to the organisation calling for more transparency about waiting times in individual …

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NHS Listening Exercise response

May 18, 2011

The Government used pause in the passage of the Health and Social Care Bill to take stock of opinion on its plans for reform of the NHS. The Patients Association took the opportunity during this break to collect the public’s view on the upcoming reforms. Through a survey and focus groups across the country we …

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Malnutrition in the community and hospital setting

April 8, 2011

Despite over 3 million people being either malnourished or at risk of malnutrition in the UK, a report published today by the Patients Association uncovers shocking statistics when it comes to patient understanding of the issue. The report entitled ‘Malnutrition in the community and hospital setting’, based on a YouGov survey, is the largest of its …

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Post-natal Depression report

March 19, 2011

The Patients Association have today published a report on “Postnatal Depression Services”. Postnatal depression (PND) effects 10 to 15% of new mothers and in rare but extreme cases can result in maternal suicide. The full report is available to download at the bottom of the page. In this report, the Patients Association found that the …

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Lottery of Dignified Care

March 15, 2011

The Patients Association’s first report of patient experiences in Wales, The Lottery of Dignified Care, commissioned by the Dignity in Care Co-ordinating Group of the Welsh Assembly Government was highlighted on Tuesday 15th February in Week In Week Out on BBC Wales. This was the third publication of patient experiences and looked particularly at the …

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Continence Care – Meeting Report

September 14, 2010

In September 2010 the Patients Association organised a series of meetings around the subject of continence care in conjunction with the Royal College of Physicians and Convatec. This report is on the meeting that launched of an audit conducted on continence care throughout the UK and is the largest survey of its kind ever undertaken …

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Meaningful and Comparable Information? – Bedsore Care

September 9, 2010

The Patients Association calls for the introduction of mandatory monitoring and reporting of pressure ulcers (commonly known as bed sores) after finding there is little comparable information about NHS performance and specialist services in this area. Treatment of pressure ulcers is estimated to cost NHS £1.4–£2.1 billion annually, representing 4% of total NHS expenditure, and approximately …

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Public Attitudes to Pain

August 11, 2010

“Public Attitudes to Pain” is the largest survey of its kind on public attitudes to pain and chronic pain ever performed in the UK. Chronic pain is continuous, long-term pain of more than 12 weeks or after the time that healing would have been thought to have occurred in pain after trauma or surgery.

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Report of cuts to NHS Services

June 1, 2010

Research conducted by the Patients Association has discovered a worrying drop in the number of elective surgical procedures conducted in 2010, coupled with an increase in waiting times for many patients. Following calls to our Helpline from patients and healthcare professionals who are concerned about access to elective surgery and increases in waiting times, the Patients …

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Patient Experience Survey 2009

January 1, 2009

A hospital appointment should be as stress-free as possible. We may already be worried about what may be wrong with us, but we should not have to add to our stress levels by wondering if we can park, what the charges will be, if a conversation with medical staff can be carried out in a …

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NHS Complaints – Who cares and Who can make it better?

September 21, 2008 A survey of members and their experience of the NHS Complaints system When you are ill, the last thing you want to have to do is make a complaint. What you want is safe, good care and to get back to normal as quickly as possible. The latest PA survey reveals an NHS complaints system that is …

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The New Dental Contract – ‘Full of Holes and Causing Pain?’

June 3, 2008

The report is based on the Patients Association’s recent survey of PCTs and reveals: Widespread confusion for patients about access to dental services in their locality An unacceptably variable service depending on the PCT commissioning the services – another glaring example of the NHS postcode lottery Patients are at risk of inadequate care because UDAs – units of …

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Pain in Older People – A Hidden Problem

March 15, 2007

The first ever piece of research with nursing home residents in chronic pain in the UK reveals the shocking extent of how our cared-for frail and elderly people are left in pain unnecessarily. The vast majority of the 77 interviewees (85%) said a doctor or nurse had never talked to them about how the often constant …

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Pain in Older People – The Carer’s Perspective

September 20, 2006

First time research reveals appalling new data on the carer’s perspective of looking after older people in pain. Commissioned by The Patients Association, 3,000 carers of those aged 65+ living with chronic pain were surveyed across Great Britain.

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100 Day Challenge

August 11, 2005

Launched at its October 2008 summit Safety first- Top of Your Boards Agenda, the 100 Day Challenge asked all NHS Boards to put patient safety as the first agenda item at Board meetings. An electronic survey of NHS Boards was sent out after the 100 day deadline to measure the response to the challenge and …

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The Public Perception of Patient Rights in Europe and the UK

February 12, 2005

A survey conducted by The Patients Association in 2005 revealed that members of the public want to know far more about the quality of the healthcare providers, the treatments they are offered and the healthcare options that are available to them.

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