Child under nutrition project

The issue of malnutrition amongst children has traditionally, although not exclusively, focused on malnutrition in the developing world. However, malnutrition or under-nutrition in children in the UK is an increasing problem, which this report looks at in more detail and highlights recommendations into what needs to be done to improve this.

Read the full report

Transforming the cycle of cancer care

At the end of 2016, our Chief Executive led a panel of experts in a discussion to address the negative cycle of cancer care that can sometimes exist in the UK. The Patients Association is committed to ensuring that the NHS provides the best service possible for patients, through collaborative working that identifies best practice and cost efficiencies.

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CARE Campaign

Our campaign is based on the four most frequent concerns that we receive from patients: not being helped to go the toilet; not given sufficient pain relief; not given sufficient nutritional intake; and inadequate communication (e.g. call bells being ignored). Our hallmark campaign recognises that everyone who goes into hospital or a care home is entitled to these fundamental aspects of care.

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Speak the lingo: understanding the health & social care system

Do you know the difference between Accident and Emergency and Urgent Care? Ever sat in a waiting room, staring curiously at the sign and wondered what it means? Not quite sure why you might go to a walk-in-centre as opposed to making an appointment with your GP? When do you call 111 as opposed to 999 and can when can you speak to your pharmacist as opposed to waiting in a queue to speak to the nurse? All of these questions are questions our helpline try to help people understand, but many of us still remain in the dark to these questions. That’s why The Patients Association are calling for better health and social care education and awareness raising, so that we can all be better champions of our own health.

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Our rights. Our NHS.

The NHS constitution and your rights.

The NHS Constitution establishes the principles and values of the NHS in England was first published in 2009. The Constitution also sets out the rights and responsibilities of patients, the public and staff within the NHS. The Patients Association believes that the NHS Constitution must remain a key resource in enabling patients to exercise their rights to access professional standards of care, access certain services commissioned by NHS bodies within maximum waiting times and be treated with dignity and respect among others.

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Access to GP Appointments 

Our Primary Care Review published in 2013, discovered that almost two-thirds of people are waiting longer than 48 hours to book a GP appointment (60.5%) and the majority (83.8%) were waiting more than 24 hours on average before being able to secure an appointment. In addition to this, over half of respondents stated that they felt that booking a GP appointment was either “very difficult” or “could have been easier”.

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Primary Care Review

Patient interactions with GPs and primary care account for 90% of patient interactions with the NHS. We reviewed how accessible and understandable accessing primary care in the community was for patients and their families.

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STPs: the fight for a stake in our future

NHS organisations have been told to develop ‘place-based plans’ to meet the future needs of their local population. These have been called  Sustainability and Transformation Plans, or STPs. STPs were presented in the NHS shared planning guidance 16/17 – 20/21 and they are meant to accelerate the implementation of the Five Year Forward View. We believe there has not be sufficient information provided to patients about what STPs are, nor adequate consultation and engagement with the public on these plans, and that is unacceptable. Join our campaign and have your say over the future of health and social care in England.

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Putting Patients First

The Patients Association has released an independent report that identifies in-patient food, drink and meal service preferences while in hospital. The report entitled ‘Putting Patients First’ provides a patient-centred insight into the experience of patient meals, which is supported by a series of recommendations for food service providers and hospitals to help ensure patients are getting what they want and need.

Download the full report

Care Home Charter for Swallowing and Medicines

This Charter identifies key pledges that both patients and health care professionals will abide by whilst in a care setting, focussing on patients who experience swallowing difficulties.

Download a draft the Care Home Charter for Swallowing and Medicines

A discussion on novel biologic and biosimilar medicines

Through the group’s national helpline, which captures people’s experiences of the health service, The Patients Association has become aware of the importance of patient involvement in the use of biologic and biosimilar medicines in their treatment.

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Time to Act: Inquiry into Hospital-Acquired Infections and Antimicrobial Resistance

The rise in the incidence of healthcare-associated infections (HCAI) and the increasing prevalence of antimicrobial resistance (AMR) in the UK is a clear cause for concern. We urge the Government, healthcare providers, academics and industry to work together to combat the growing economic and human costs of inadequate infection control.

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Nutrition Checklist Project

It is estimated that there are more than three million people in the UK who are malnourished or at risk of malnourishment. The Patients Association has carried out a review of policy, practice and patient views in relation to nutrition, malnutrition and the hospital discharge process and established a set of recommendations to help reduce the incidence of malnutrition. This Patients Association’s paper identifies a gap between policy and practice and the need to raise awareness of the issues with both professionals, patients and relatives.

Read the full report

Download the Nutrition Checklist

Under the scan: patients’ views of X-rays and scans in the UK

August 3, 2016  

The Patients Association has produced a joint report with the Royal Colleges of Radiologists. The report looked into the patient experience of undergoing scans and X-rays and how and when the results were given to them.  

Read the full report here: RCR Under the scan Report 

Antimicrobial Resistance – A Patient Safety Issue Report

May 12, 2016  

The Patients Association’s report assesses whether Clinical Commissioning Groups are fulfilling their stewardship responsibilities in the battle against antimicrobial resistance. Patients Association – Antimicrobial Resistance a Patient Safety Issue 

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Survey of medicines related care of residents with dysphagia in care homes

January 13, 2016

A new report from the Patients Association called ‘Survey of medicines related care of residents with dysphagia in care homes’ has found as many as 50% of residents are affected by swallowing difficu