Ethical and societal issues

2020 - Consultation response - ABPI code of practice
We welcome the principles and approach to working with voluntary sector organisations of the ABPI's code.

Latest

Prioritising patient experience: Other than experiences of waiting, we measure but we don’t act

Patients Association Trustee Alf Collins and Richard Sloggett, Freelance Health Consultant and Programme Director at Future Health Research, make a simple plea: that all aspects of patient experience – not just their experience of accessing services – is taken seriously.
Supporting patient engagement and revitalising Patient Participation Groups

We have completed an exciting initiative in partnership with the Hertfordshire and West Essex Integrated Care Board (ICB) to support patient engagement and revitalise Patient Participation Groups post pandemic.
New project focuses on improving health equity

Bristol Myers Squibb awards the Patients Association grant to research how to improve access to healthcare for patients affected by health inequalities.
The Untold Patient Stories: Shedding the light on the realities of life with a long-term condition

The Patients Association is running a webinar following the publication of Future Health’s recent report: The Forgotten Majority. This important campaign aims to raise awareness among policy representatives from Government and other political parties, as well as other key stakeholders, about the real life every day challenges faced by people with long-term health conditions and advocate for meaningful policy change as we approach the General Election.

New project focuses on improving health equity

Bristol Myers Squibb awards the Patients Association grant to research how to improve access to healthcare for patients affected by health inequalities.
Martha's Rule - a major step for patient partnership

The Government has confirmed Martha's Rule will be introduced in 100 NHS sites across England beginning in April 2024.
The Patients Association launches general election manifesto

The next Government must ensure people are able to get the care they need. Reversing the normalisation of the crisis the NHS faces and rebuilding the service's relationship with patients must be addressed. Our manifesto spells out how to make that happen.
How Patient Participation Groups can support interventions to tackle healthcare inequalities

As part of our project with Hertfordshire and West Essex ICB, patient groups explored how they can support local efforts to tackle health inequalities.
Research shows patients want more control over how their health data are shared

More than a million people opted out of sharing their GP data when NHS Digital announced its GP Data for Research and Planning programme in 2021. This report explors why patients were so concerned and what should be done to improve confidence.
Letter to the Secretary of State

On 6th January our Chief Executive Rachel Power, and Sir Robert Francis KC, wrote to the Secretary of State for Health and Social Care asking him to declare and national incident in the NHS. Here is the text of the letter.
Equality, Diversity and Inclusion

Our objectives for equality, diversity and inclusion
The long road to recovery

The number of people waiting for hospital treatment is now 6.1 million, including 300,000 who have been waiting a year. We analyse the elective recovery plan and the integration white paper from a patient point of view.
Act now to protect the NHS

The Patients Association calls on Sajid Javid to prevent ‘catastrophic winter’ in a letter to the Health Secretary
Pandemic Patient Experience II

Our second survey of patients' experiences during the COVID-19 pandemic.

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