Technology

2021 - Consultation response - NHS data strategy
We welcomed the proposals for the NHS's data strategy, but urged that it be developed and delivered in partnership with patients, with greater transparency and engagement to ensure that patients maintain confidence in how the NHS uses their data.

Latest

Developing GP practice patient groups

We've been working with patient participation groups in Hertfordshire and West Essex for more than a year now. In this workshop, the team review progress to date.
Patients Association statement on planned strike action by junior doctors

Festive season strikes will strike fear into patients waiting for care. We urge both parties to return to talks.
Understanding changes in primary care: your wider general practice team

In this webinar, we’ll look at some of the new professionals patients may see in general practice, such as social prescriber, paramedic and mental health practitioner.
Changes in primary care, understanding the role of the reception team

We had a great panel join us to talk about the plan to recover access to primary care and talk about the new reception team.

Taking patients with us on the federated data platform

The use of patient data has already changed the NHS and it will continue to do so. The possibilities to improve patient care are huge. However, the NHS uses data from different IT systems that don’t talk to each other causing frustration for staff and delays for patients. Improving connections between IT systems so that NHS staff can plan and deliver services and treatment more effectively has the potential to help patients experience better care. This will help us all.
New report on the relationship between the public, their data, and the health and care system

Our new report looks into the relationship between patients, their data, and the health and care system. It shows patients recognise the potential data use has to enhance healthcare quality but also that to realise this potential, patients’ concerns about how their data are handled must be addressed.
use MY data to help others and help me

Alison Stone, Head of Programmes and Engagement working on behalf of use MY data members, highlights the benefits of sharing our patient data with medical researchers and the impact it has on healthcare.
Digital primary care services: Online GP access and the NHS App

This event was for people who support others to get online and use the NHS App. We were joined by members of NHS England who took the audience through latest developments in the App, how to make the most of the App, and how to support others to use the App.
Virtual wards: bringing the hospital home

Our well-attended webinar on 25th May about virtual wards, chaired by our Chair of Trustees, Ann Lloyd Keen, how patients can be cared for where they live.
Your health information at your fingertips

We held a webinar about accessing health records through the NHS App, with NHS England. Chief Executive Rachel Power, and NHS England's National Director of Transformation Dr Timothy Ferris, discuss why improving access to records is so beneficial.
Online access to GP health records – what’s in it for patients?

If you missed our event, Online access to GP health records – what’s in it for patients? you can watch a recording of the webinar and also download the presentations.
Research shows patients want more control over how their health data are shared

More than a million people opted out of sharing their GP data when NHS Digital announced its GP Data for Research and Planning programme in 2021. This report explors why patients were so concerned and what should be done to improve confidence.
Letter to the Secretary of State

On 6th January our Chief Executive Rachel Power, and Sir Robert Francis KC, wrote to the Secretary of State for Health and Social Care asking him to declare and national incident in the NHS. Here is the text of the letter.
Putting patients at the heart of our mission

Abbie Johnson, Patient Engagement Lead at AstraZeneca UK Limited, one of the sponsors of patient partnership week, explains why partnership with patients is critical to the company’s work.