Ethical and societal issues

2020 - Consultation response - ABPI code of practice
We welcome the principles and approach to working with voluntary sector organisations of the ABPI's code.

2019 - Policy statement - Assisted dying
Our position on assisted dying and assisted suicide.

2018 - Policy statement - Patient data
Our position on when and how patient data should be used.

2018 - Consultation response - Opt-out organ donation
The Government has decided to introduce a system of opt-out organ donation (or 'presumed consent') in England. This response gives our recommendations on safeguards and practicalities for the new system.

Latest

Recruitment starts for pioneering lived experience advisory panel

Patients Association launches its first lived experience advisory panel to help its patient partnership work
Making shared decision making everyday practice

In a major new report, we explore shared decision making. We look at what it is, what it's benefits are, and what's holding back its wider adoption.
Patients Association urges cautious approach to lifting of COVID-19 restrictions

The possibility of lifting all COVID-19 restrictions on 19 July is of profound concern to us. Read why.
Our 2020 annual review

Read our 2020 annual review to find out how the pandemic changed our working habits but didn't stop our work.

Pandemic Patient Experience II: Delays and cancellations

Most respondents to our survey had experienced delayed or cancelled appointments.
Pandemic Patient Experience II: Staying away from care?

We found that it was more common during the pandemic for patients to try to access care but struggle than to stay away voluntarily, although both happened.
Pandemic Patient Experience II: NHS 111

Our survey showed a modest increase in use of NHS 111 during the pandemic, and a mix of patient experiences - more positive than negative, but still with some cause for concern.
Pandemic Patient Experience II: Access to services

Patients told us about the difficulties they encountered accessing care during the pandemic, with GP services a particular problem.
Pandemic Patient Experience II: Vaccinations

Patient feedback about the vaccination programme has been very positive, with most respondents to our survey finding appointments easy to arrange and reassuring to experience.
Pandemic Patient Experience II: Shielding

We found that many people chose to shield themselves without having been told to do so, and not in line with official NHS advice.
Pandemic Patient Experience II: what patients told us

An overview of the findings of our report Pandemic Patient Experience II.
Pandemic Patient Experience II

Our second survey of patients' experiences during the COVID-19 pandemic.
COVID-19

Our formal policy documents on the novel coronavirus and COVID-19 pandemic.
Medicines and treatments

The importance of safe and effective medicines and treatments being available to patients.