Engagement and coproduction

2022 - Consultation response - Working in partnership with people and communities, NHS England
NHS England's statutory guidance for Integrated Care Boards, NHS Trusts, and NHS Foundation Trusts presents positive ambitions and lays out the terms of the NHS sharing power with local communities. We welcome these ambitions, but they will require a major change in the NHS’s culture and operation at every level, which may take many years to embed.

2021 - Consultation response - NICE guideline on shared decision making
NICE's guideline on shared decision making is a welcome development in helpling to secure full involvement of patients in decisions about their care.

Latest

Prioritising patient experience: Other than experiences of waiting, we measure but we don’t act

Patients Association Trustee Alf Collins and Richard Sloggett, Freelance Health Consultant and Programme Director at Future Health Research, make a simple plea: that all aspects of patient experience – not just their experience of accessing services – is taken seriously.
Supporting patient engagement and revitalising Patient Participation Groups

We have completed an exciting initiative in partnership with the Hertfordshire and West Essex Integrated Care Board (ICB) to support patient engagement and revitalise Patient Participation Groups post pandemic.
New project focuses on improving health equity

Bristol Myers Squibb awards the Patients Association grant to research how to improve access to healthcare for patients affected by health inequalities.
The Untold Patient Stories: Shedding the light on the realities of life with a long-term condition

The Patients Association is running a webinar following the publication of Future Health’s recent report: The Forgotten Majority. This important campaign aims to raise awareness among policy representatives from Government and other political parties, as well as other key stakeholders, about the real life every day challenges faced by people with long-term health conditions and advocate for meaningful policy change as we approach the General Election.

Supporting patient engagement and revitalising Patient Participation Groups

We have completed an exciting initiative in partnership with the Hertfordshire and West Essex Integrated Care Board (ICB) to support patient engagement and revitalise Patient Participation Groups post pandemic.
New project focuses on improving health equity

Bristol Myers Squibb awards the Patients Association grant to research how to improve access to healthcare for patients affected by health inequalities.
Prioritising patient partnership: A call to action for the next Government

The British Social Attitudes survey showed public satisfaction with the NHS is at an all-time low. We’re calling on the next Government to treat patients as true partners in their health as a key way to improve patients’ experiences of healthcare.
Martha's Rule - a major step for patient partnership

The Government has confirmed Martha's Rule will be introduced in 100 NHS sites across England beginning in April 2024.
The Patients Association launches general election manifesto

The next Government must ensure people are able to get the care they need. Reversing the normalisation of the crisis the NHS faces and rebuilding the service's relationship with patients must be addressed. Our manifesto spells out how to make that happen.
Patient engagement in medical technology policy making

The Patients Association and Coloplast UK partnered on a patient and carer engagement project in policy making of medical technologies for intimate healthcare. The project’s report makes five recommendations.
Patients Association commits to improving public participation in research

The Patients Association has joined the Health Research Authority and other leading organisations in a pledge to further public participation in health and social care research.
Developing GP practice patient groups

We've been working with patient participation groups in Hertfordshire and West Essex for more than a year now. In this workshop, the team review progress to date.
Personalising care and offering patients choice

In the last of our blogs on the development of an outpatient strategy, we reflect on what we learned about patient choice, personalised care and treating the whole person.
Kindness, reasonable adjustments and consistency needed across outpatients

In our second blog about the work we’re doing on outpatients with NHS England and the Royal College of Physicians, we look at staff education, health inequalities, integrating care, and staffing.

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