Patients, their family and carers should be represented at all stages of service development.

The Patients Association can assist your organisation in all sorts of areas. From improving your complaints handling, to supporting your local patient group, to co-producing reports, we ensure that the patients voice is heard loud and clear every step of the way.

Gathering patient feedback

We can conduct large scale patient and carer feedback surveys on a range of issues and/or small in depth qualitative interviews and focus groups to offer patients an opportunity to be heard.  We can review current processes for feedback and recommend improvements.  We can support a one-off project or an ongoing piece of work through our NHS membership scheme.

Developing patient involvement

We have developed a model of working with NHS Trusts, GP practices and other health and social care organisations to assist with patient involvement. We can help to improve patient engagement and move towards more co-productive ways of working, for example:

  • Setting up new and supporting existing Patient Councils
  • Involving patients and carers in commissioning using research evidence –jointly with a university
  • Development of patient led programme to involve the local community in owning their hospital
  • Development of “Always Events” and patient measures for an NHS England Area Team.
I would like to thank the Patients Association for assisting us with developing opportunities for student nurses to engage more widely with patient representatives in their local communities.  Our collaboration has helped us to progress and develop our public and patient involvement strategy particularly with the undergraduate nursing programme. Thank you.
- Kim Young MSc, FHEA, PGCE, RN, RNT, Associate Professor: Adult Nursing, University of Plymouth

Supporting Patient Participation Groups (PPGs)

GP practices in England are required to have a PPG and whilst the flexibility of having no set way to run them is an advantage in being able to tailor each PPG to the needs of the community served by each individual GP practice, it can also be daunting to set one up without an established model for how it should work.

In partnership with Londonwide Local Medical Practice (LMCs) we've developed a toolkit to assist general practices and patients to establish an effective PPG.

The toolkit is free for any PPG to use.  We also run regular webinars to assist those establishing or seeking to improve their PPG.

Click here for access to the PPG toolkit

Click here to contact us about further assistance with your PPG

Developing resources and reports

We can work with your organisation to develop bespoke resources to enable participation for patients in your local area, for example:

  • Working Together Guide, developed with Plymouth University, provides tips on how better to involve patients as equal partners in the spirit of true "co-production”
  • Nutrition checklist creates an opportunity for health care practitioners, family carers and the voluntary sector to identify issues about diet and nutrition.

Find our library of reports here

Complaints handling

Find out about our complaints handling improvement work here

Work with us

If you would like help to develop or support your patients group or ideas about how better to involve wider numbers and types of patients please contact Heather Eardley, Head of Projects and Partnerships on [email protected]  or 07872 633 189.