Patient surveys and focus groups 

We regularly offer patients opportunities to take part in surveys and focus groups, to inform both our policy and campaigning work, and our work with other organisations on projects that enhance practice and knowledge in health and social care.

All information collected will be held in the strictest confidence and only used in accordance with the permissions you give us and with our privacy policy

Commission a patient survey

We work with, and on behalf of, other organisations to involve patients more closely in service design and delivery, new products and technologies, with a view to improving patient experience and patient safety. 

Find out more here about how to work with us

Current opportunities to have your say:

Survey: Tell us about your experiences of unsafe, premature discharge

The Patients Association has opened a survey to hear people’s experiences of unsafe discharge from hospital.

In particular, we want to hear about times when someone has been discharged from hospital despite not being well enough to leave. If the person suffered harm as a result of this, or was at a real risk of harm, it was an unsafe discharge. We are not looking for information about times when a person has been discharged from hospital and problems have arisen because of a lack of support from social care services or local health services. A large amount of research has already been conducted into those situations.

Far less research has been done on discharges that simply happened too early, even though we hear about this from callers to our helpline. If you think your experience, or the experience of someone close to you, matches this description of an unsafe, premature discharge, please share your experiences with us in this short survey.  

We will be issuing a report, based on what people tell us. The survey should take around seven minutes to complete. Share your views here.

NICE recruiting for lay members to join its Indicators Advisory Committee

The National Institute for Health and Care Excellence (NICE) are inviting people to join their Indicators Advisory Committee (IAC) as lay members to help drive quality improvement across health and social care. They are looking for people who can help make sure the experiences of patients, carers and service users are included in the development of NICE indicators. This may include:

  • identifying major concerns of patients, carers and service users to inform committee discussions
  • making sure that the views of patients, carers and service users are taken into account when the committee recommends indicators
  • checking that patient/public evidence and equality issues are reflected in documents and guidance produced.

 The standing lay member of this committee will play a key role in making sure that the views, experiences and interests of the public are included in the committee’s decision-making. Find out more about the vacancy and apply by Friday 21 June here.

Have your say on how doctors should collect and reflect on patient feedback

The General Medical Council (GMC), the independent regulator of the UK's doctors, is inviting patients and the public to give their views on proposals about how doctors use feedback from their patients.

Doctors must regularly show the GMC that they are giving high quality care to patients and keeping up to date with the latest medical practice. This process is called revalidation, and the GMC’s current guidance says that doctors must review feedback from a sample of their patients at least once every five years. This is usually done through a questionnaire, which is collected during a clinic or surgery, and often provided to a patient by a receptionist or other health professional, but some doctors have to give these out themselves.

The GMC’s proposed changes include updating the method of collecting feedback to allow a wider range of patients to take part, and addressing patients’ concerns that their comments may have a negative impact on their future care. It also considers the view that doctors should look at feedback from patients more than once every five years.

You can find more information about the GMC’s survey on their website. The survey is open until 23 July.