Patient surveys and focus groups 

We regularly offer patients opportunities to take part in surveys and focus groups, to inform both our policy and campaigning work, and our work with other organisations on projects that enhance practice and knowledge in health and social care.

We value your participation and encourage you to complete the below surveys - they should no longer than ten minutes each to complete and will provide us with valuable information on patients’ views across a range of topics.

All information collected will be held in the strictest confidence and only used in accordance with the permissions you give us and with our privacy policy

Medication for specific conditions

Are you taking medication to treat a condition such as rheumatoid arthritis, psoriasis or Crohn’s disease?

We would like to hear your thoughts so we can better understand the needs of patients on these types of medications and the issues surrounding changes to medication, involvement in shared decision-making and any educational needs.

We will be holding a focus group in Birmingham to gather more detailed views on this subject on Thursday 20 September at 1:30pm. To register your interest, please email [email protected] or contact the helpline on 020 8423 8999.

This project is funded by a non-restricted educational grant from AbbVie. 

Help improve the quality of information provided with medications

The information packs that accompany medications are extremely important. They allow patients to understand their drugs, the correct dosage, and any possible side effects. AbbVie, the company who manufacture Adalimumab (also known as ‘Humira’), have recently updated the information pack they send to patients when they first start taking this medication for conditions such as arthritis, Crohn’s disease and ulcerative colitis.

If you are taking this medication, the Patients Association would like to invite you to comment on the quality of information provided within the packs, including content, design, appropriateness and whether it provides the information that patients need. Join us for an informal meeting from 9:30am to 12:30pm on Thursday 27 September at The Studio, 7 Cannon Street, Birmingham, B2 5EP.

Email [email protected].com to register your interest. Places are limited so book early.

Commission a patient survey

We work with, and on behalf of, other organisations to involve patients more closely in service design and delivery, new products and technologies, with a view to improving patient experience and patient safety. 

Find out more here about how to work with us