Patient surveys and focus groups 

We regularly offer patients opportunities to take part in surveys and focus groups, to inform both our policy and campaigning work, and our work with other organisations on projects that enhance practice and knowledge in health and social care.

All information collected will be held in the strictest confidence and only used in accordance with the permissions you give us and with our privacy policy

Share your views: help deliver the NHS Long Term Plan

The NHS has launched a call for patients, the public, NHS staff and partner organisations to provide their views on potential proposals for changing current primary legislation relating to the NHS.

The call for people to share their views follows a meeting between leaders of NHS England and NHS Improvement, where both organisations agreed a series of new measures to ’improve collaboration‘ across the health service, including a request from the two bodies for permission to merge. The two bodies believe that targeted amendments to the law could help local and national health organisations work together more effectively to improve services for patients.

You can give your views directly to NHS England about its proposals by completing this online questionnaire. The survey closes on 25 April.

The Patients Association will be publishing an initial reaction within the next few weeks and inviting further views before we finalised our response.

Share your views: National Data Guardian

Patients and members of the public are invited to share their views on the key priorities for the National Data Guardian for Health and Social Care (NDG), as the role moves to a new phase. In December 2018 Parliament passed a law to place the role of the NDG on a statutory footing. This law gives the NDG the ability to issue guidance about the processing of health and adult social care data.

Your views will help the Government decide what the key priorities should be for the NDG. You find out more about the consultation and submit your response here. The deadline for responses is 22 March.

NICE committee to develop antimicrobial prescribing guidelines

The National Institute for Health and Care Excellence (NICE) is recruiting expert lay members to help develop antimicrobial prescribing guidelines.

NICE is looking for individuals with experience of:

People who have an understanding or experience of either of these two topics are invited to apply. This understanding could have been gained through personal experience, as a relative or carer of someone who has used health services, or as a volunteer or employee of a relevant voluntary organisation or support group.

The time commitment for each role is around seven months. More information can be found here.

Have your say: what information needs to be shared in a person’s digital health and care record?

The Professional Record Standards Body is working with NHS England to determine what information needs to be shared in a person’s digital health and care record, and they would like to hear your views. The aim of the local health and care records programme is to help local organisations move from today’s position, where each health and care organisation holds separate records for the individuals they care for, to one where an individual’s records are connected up from across the health and care system.

To help the PRSB determine exactly what needs to be contained in this record, they are holding a workshop on 5 March to discuss this important work. This will be attended by a selection of professionals across a wide range of different sectors, as well as patients and carers.

You can find out more about the workshop and apply here. The PRSB are holding a series of online discussions in the coming months on topics ranging from mental health and social care, to end of life, and maternity and child health. You can find out more about these webinars here.

Commission a patient survey

We work with, and on behalf of, other organisations to involve patients more closely in service design and delivery, new products and technologies, with a view to improving patient experience and patient safety. 

Find out more here about how to work with us