Patient surveys and focus groups 

We regularly offer patients opportunities to take part in surveys and focus groups, to inform both our policy and campaigning work, and our work with other organisations on projects that enhance practice and knowledge in health and social care.

All information collected will be held in the strictest confidence and only used in accordance with the permissions you give us and with our privacy policy

Invitation to participate in research on the late presentation of lung, bowel, kidney or colorectal cancer

Public Health England (PHE) is undertaking research focused around understanding the late presentation of cancer. They want to understand patients’ ’journey‘, from the time before they presented with cancer symptoms, to when they were diagnosed, through to when they were able to discuss treatment options. They intend to explore the practical elements of living with cancer, as well as the emotional impact on the person and their close family and friends.

The cancer areas that PHE are particularly looking to recruit into the study are lung, colorectal, kidney and bowel. The people who PHE would like to include in their study may fall into one or some of these categories:

  • Recently [late] diagnosed with the cancers named in this study
  • Going through treatment for this cancer having been diagnosed at a late stage (III or IV)
  • Survivor / in remission from this cancer having been diagnosed at a late stage (III or IV)
  • People who have lost someone to this cancer who was diagnosed at a late stage (III or IV).

During this stage of the research project, PHE are undertaking research via face to face interviews with small group of friends, family members or others in their support network who have been directly affected by the named cancers in this study.

Interviews would be conducted at a place and time convenient to participants. To express an interest in participating, email [email protected] 

Have your say: complete our survey on NHS England’s consultation on low-value medicines

NHS England has launched a public consultation on whether to limit the prescribing of eight items, in an effort to save almost £70m per year.

The Patients Association will be responding to this consultation, and would like to hear your views to inform our response. How will the restriction of these types of medicines affect you? Do you agree with NHS England’s efficiency drive? NHS England launched their first wave of guidance on low-value medicines a year ago – has any of this affected you in the past 12 months?

While we’re interested in hearing about people’s experiences of rationing more generally, this consultation could be particularly relevant to people in England who:

  • Have type 2 diabetes
  • Take medicine for their heart rhythm
  • Use bath or shower preparations for their skin conditions.

We have responded to previous consultations on this topic and our view has been clear: NHS England must approach this with the experiences of patients in mind – not with financial considerations as their primary concern. We continue to make this point to NHS England, and your comments and thoughts to our survey will strengthen our collective voice. You can complete the survey here – it should take around ten minutes to do so.

You can also share your views directly with NHS England here.

Share your views on medication errors

The Patients Association is engaging in the national policy debate on a number of health issues, and one of the areas we’d like to hear your views is on the challenge of medication errors in the UK.

Across the UK, an estimated 237 million medication errors occur every year, of which more than 66.2 million have the potential to cause moderate or severe harm to patients. Over 22,000 deaths per year are estimated to be linked to avoidable adverse drug reactions caused by medication errors, costing the NHS £1.6bn annually.

These are significant numbers with a substantial impact on patients each year. We would like to hear your thoughts on the implications of and potential solutions to medication and IV infusion medication errors. Take part and give us your views by emailing [email protected].

The Patient's Choice Awards - entries open!

Do you want to show your appreciation for a nurse, midwife, health visitor, healthcare assistant or assistant practitioner who has made a real difference to your or a loved one's care? Know a nurse or midwife who went above and beyond to deliver excellent care?

You can nominate them for the 2019 Patient’s Choice Award!

The Patient’s Choice Award is part of the Royal College of Nursing Awards, the highest accolade for nursing in the UK. This unique category not only allows patients to nominate a nurse for this prestigious Award, but also gives you opportunity to play a part in deciding the winner: the Patient’s Choice Award winner will be decided by public vote which goes live in May 2019.

If you know a nurse that deserves to be recognised on a national scale, take five minutes to nominate them at You have until Friday 1 February to submit your entry.

Survey for nurses and midwives: Should family-focused nursing be recognised in the UK?

Nurses and midwives are invited to share their thoughts on whether the concept of ‘family nursing’ should be formally adopted in the UK, to help the growing number of carers who look after sick relatives.

The study is being conducted by a consortium of nurses in the UK and Ireland and they are asking nursing colleagues to respond to an online questionnaire. The survey will take around 10 minutes to complete and responses will be anonymised.

The type of nursing that has developed in the UK has tended to focus on the individual rather than the whole family, although some nurses do try and extend their support to the relatives. Where that happens, it is often the result of initiatives taken by individual nurses. Researchers now want to hear what people in the nursing profession think about the idea of family-focused care being formalised in the UK.

You can complete the survey here.

Commission a patient survey

We work with, and on behalf of, other organisations to involve patients more closely in service design and delivery, new products and technologies, with a view to improving patient experience and patient safety. 

Find out more here about how to work with us