Patient surveys and focus groups 

We regularly offer patients opportunities to take part in surveys and focus groups, to inform both our policy and campaigning work, and our work with other organisations on projects that enhance practice and knowledge in health and social care.

All information collected will be held in the strictest confidence and only used in accordance with the permissions you give us and with our privacy policy

Focus group: Suffering information overload? Discuss at our focus group in Birmingham on 3 December

Many people access information about health and social care online, but much of it is misleading and it can be difficult to separate out the facts. This dilemma is exacerbated when we’re concerned with a child’s health, which is a particularly stressful time.

Are you suffering from information overload? Have you looked online when your child has been ill? There’s lots of information on health out there, but what sources do you trust? What is important to you when you need help and advice for your child?

If you live in or near Birmingham, join us on 3 December for a free half day workshop to have your say on this important topic. Email [email protected] to register your interest or for more information. Places are limited so book early.

Welcome and coffee is from 9:45am with the session commencing at 10am and due to run until 2pm.

Participate in research on the late presentation of cancer

Public Health England (PHE) is undertaking research focused around understanding the late presentation of cancer. They want to understand patients’ ’journey‘, from the time before they presented with cancer symptoms, to when they were being diagnosed, through to when they were able to discuss treatment options. They intend to explore the practical elements of living with cancer, as well as the emotional impact on the person and their close family and friends.

The cancer areas that PHE are particularly looking to recruit into the study are lung, colorectal and bowel. The people who PHE would like to include in their study may fall into one or some of these categories:

  • Recently [late] diagnosed with the cancers named in this study
  • Going through treatment for this cancer having been diagnosed at a late stage (III or IV)
  • Survivor / in remission from this cancer having been diagnosed at a late stage (III or IV)
  • People who have lost someone to this cancer who was diagnosed at a late stage (III or IV).

 During this stage of the research project, PHE are undertaking research via three primary methodologies:

  • An online community with patients within the at-risk definition of presenting late with cancer
  • Face to face interviews with healthcare professionals
  • Small group of friends or family members (three people) of people who have been directly affected by the named cancers in this study

Interviews would be conducted at a place and time convenient to participants. To express an interest in participating, email [email protected] by Friday 30 November.

Commission a patient survey

We work with, and on behalf of, other organisations to involve patients more closely in service design and delivery, new products and technologies, with a view to improving patient experience and patient safety. 

Find out more here about how to work with us