The Patient Coalition for AI, Data and Digital Tech in Health

As the first of its kind, the Patient Coalition for AI, Data and Digital Tech in Health unites a truly diverse group of patient groups, charities, Royal Colleges and industry with a focus on championing the patient perspective in digital health.

The Coalition will work to provide insights and influence the policymaking process to progress this agenda by: identifying gaps in the evidence and conducting research to offer novel insights on patient priorities in digital health; developing policy recommendations; and engaging with Government stakeholders and other policymakers to advocate and campaign for system improvements.

Our purpose

As the first of its kind, the Patient Coalition for AI, Data and Digital Tech in Health unites a truly diverse group of patient groups, charities, Royal Colleges and industry with a focus on championing the patient perspective in digital health.

The Coalition will work to provide insights and influence the policymaking process to progress this agenda by: identifying gaps in the evidence and conducting research to offer novel insights on patient priorities in digital health; developing policy recommendations; and engaging with Government stakeholders and other policymakers to advocate and campaign for system improvements.

Our priorities

This Coalition will engage with some of the most important issues in digital health policy including:

  • Health inequalities – A critical barrier to uptake of digital healthcare technology where health literacy and access to digital health technology varies significantly across the UK.
  • Good practice – As the NHS continues to embrace digitisation and transform the way patients receive care, there is a need to highlight examples of good practice to help ensure that we can learn from past experience and continue improving digital healthcare.
  • The benefits of digital health – As there is still some uncertainty among patients regarding the nature and benefits of digital health, there is a need to continue highlighting its potential value to support healthcare professionals to improve outcomes and experience.
  • Data sharing – Patients strongly believe in the value of digital health but there are still significant concerns about using it, particularly around data collection and sharing.
  • The patient perspective – Patient experience of digital health technology has been mixed and in order to ensure it works for all patients, policymakers must understand what patients want from digital health.

Our manifesto

Read our manifesto, including how we plan to put the patient first ensuring that patient priorities lie at the heart of digital health policy.

Our members

Asthma + Lung UK
British Heart Foundation
British Lung Foundation
Diabetes UK
Fight for Sight
MS Society
Parkinson’s UK
Patient Information Forum
Patient Safety Learning
Royal College of Radiologists
Royal College of Pathologists
Stroke Association

Coalition Chair

The Patients Association

Sponsor

Boehringer Ingelheim

Secretariat

Lexington

If you’re interested in joining the Coalition or for further information about our work, please contact [email protected]