We’re pleased to share the recording of our event, Shared decision making: a reality for everyone?, which took place on 24th November 2021.

Also available are the panel's presentations, and we are grateful to our speakers for allowing us to share their slides. If you use any of the information from the presentations, please make sure to credit the individual panellists and their organisations, if applicable.

We'll be posting answers to the numerous questions attendees asked during the meeting on here too. Our panellists are kindly working through them all, which is taking some time as there were nearly 200 questions asked during the meeting. We’ve grouped them into themes and will publish the answers as soon as we have them.

Also, you may like to read our report on shared decision making, Shared decision making: shared reality or insider jargon? In it,we discuss barriers to shared decision making and put forward a number of recommendations aimed at improving the practice of shared decision making.

What is shared decision making?

Shared decision making describes the way in which patients and their healthcare providers work together to decide treatment, management or self-management support goals. It includes sharing information about a patient’s options and preferred outcomes. The goal is for patient and professional to agree treatment, or no treatment.

Shared decision making means patients can express their values, beliefs and goals for their healthcare, and work with clinicians and professionals to reach decisions that reflect them.

It is an approach that has been shown to bring benefits for patients and the healthcare system. For the Patients Association, our commitment to patient partnership at every level makes shared decision making an approach of central interest to us: it enables true patient partnership in individual care and treatment decisions.

Our event

Our event was on Wednesday 24th November.

Our panel was:

  • Rachel Power (chair) - Chief Executive, Patients Association
  • Ruby Bhatti OBE – Patient/Carer, Patients Association member
  • Hameed Khan - Patient/carer, Patients Association member
  • Alexandra Freeman - Executive Director, Winton Centre for Risk and Evidence Communication
  • Jonathan Berry - Personalised Care Group, NHS England & Improvement
  • Victoria Thomas - Head of Public Involvement, NICE

About our panel

Rachel Power (Chair)

Rachel has over 20 years’ experience of working in health and social care within the voluntary sector. She joined the Patients Association as its Chief Executive in June 2017 and has overseen a significant period of change, establishing a new senior leadership team and a new three-year strategy to help drive the organisation forward.

She is passionate about empowering patients and speaking on their behalf to ensure the patient voice is heard and acted upon.

Dr Ruby Bhatti OBE

She is chair of the Wolfson Centre for Applied Research, chair for the Quality and Safety Patient’s Panel and Improvement Academy at Bradford Institute for Health and Research, and board member for the National Institute for Health Research (NIHR) Applied Research Collaboration Yorkshire and Humber board. She is co-chair for the service user research panel at the University of Bradford. She is a reviewer for the NIHR and Assessor for NHS National Innovation Accelerator. She is a patient research ambassador for Bradford Teaching Hospital Foundation Trust. She sits on the Yorkshire & Humber – Black, Asian and minority ethnic advisory panel and patient research champion panel.

Ruby is also deputy lay chair for the Bradford District and Craven Clinical Commissioning Group; chair for the Primary Care Commissioning Committee; member of the West Yorkshire and Harrogate Joint Committee of Clinical Commissioning Groups. She sits as a lay associate hospital manager for the mental health department, and also a committee member on the mental health legislative committee both for Bradford District Care NHS Foundation Trust.

Ruby has been appointed to NHS England’s Patient and Public Voice Assurance Group and NIHR Recovery, Resilience and Growth Group. She was awarded an OBE for housing and young people and an honorary doctorate from the University of Bradford.

Hameed Khan

Hameed is an ex-service user of mental health services and a carer for his mother who has physical and mental ill health conditions. His vocational background is working in the voluntary and community sector, He has some teaching experience in further education colleges. He is very passionate about equality, diversity and inclusion and embeds this in his work and advocates for patients and carers to receive quality services. He is a member of the CVDPREVENT steering group.

Dr Alex Freeman

Alex is Executive Director of the Winton Centre for Risk & Evidence Communication, a multi-disciplinary group who research how best to help communicate evidence with decision makers. Within healthcare they have worked on producing training in shared decision making for healthcare professionals as well as decision support tools and risk communication tools, such as the NHS Predict online sites.

Jonathan Berry

Jonathan joined NHS England and Improvement in November 2015 where he leads on policy development with regard to health literacy and shared decision making. Prior to this he worked in the voluntary sector for a national organisation that specialises in delivering health literacy programmes in deprived communities, raising practitioner awareness about the impacts of low health literacy, user testing health information with people who have lower levels of health literacy and lobbying policy makers to ensure that health literacy is central to health and other government policies. He has an extensive health background, which includes developing and project managing the development of the national health literacy programme, Skilled for Health, on behalf of the Department of Health and Social Care and the Department for Business Innovation and Skills. Before that, he worked in the NHS leading on public and patient involvement for 10 years where, among other things, he introduced a Patient Advisory and Liaison service and an expert patient programme.

His background is in policy development, implementing policy, partnership working, quality improvement, change management, project management, training and advocacy. He has an MA in Applied Health Studies and was recently trained in motivational interviewing.

Victoria Thomas

Victoria has run the Public Involvement Programme at National Institute for Health and Care Excellence (NICE) since 2009, and has been with the Programme since 2001. Following a degree in art history, Victoria has worked exclusively in the public and voluntary sector, specialising in healthcare quality improvement activities and in patient and public involvement.  Victoria’s MSc, in Science and Society, concentrated on issues of science communication, science and the public, and lay people’s engagement with evidence-based healthcare initiatives.  Victoria has an interest in shared decision making, in particular the role of national guidance as the basis of informed decision making by both patient and clinician.

We are grateful to the following companies whose support has enabled us to carry out research into shared decision making, which enabled us to publish our report earlier in the year and develop this event: AbbVie, Alexion, Eido Healthcare and Novo Nordisk.

Booking for this event has now closed.